Prayers Have Been Answered
I received a phone call yesterday from TP's doctor's office. TP's labs were "perfect", and they have remained within normal limits for quite some time now. So, the doctor has now decided to reduce the Prednisone to 10 mg. a day! Last year at this time, she was at 30 mg. a day. Also, the Solu-Medrol infusions (that's a liquid form of prednisone which she gets through an IV drip - it's the equivalent of 1,000 mg. of Prednisone) will be reduced, too! She is currently getting those infusions once a month. She will get her next one in 4 weeks, then if her labs are still normal, she will get the following one in 6 weeks. . . and if those labs are normal, then she will get her FINAL infusion six weeks after that. Compare that to last year when she was getting them three times a week.
So - by the end of this year, if all goes well, she will be totally off the Solu-Medrol!!!
At that point in time, they will then reduce the oral prednisone even more.
Do you know how long we have waited and prayed for this day to come? Do you know how grateful we are to her wonderful doctors and nurses at Children's Hospital? Do you know how thankful we are to God? Words can't even convey what this news means to us.
When I told TP the news, she started jumping up and down - "Are you serious?", she asked. She couldn't contain herself, and she jumped right over to me, and we both started jumping up and down, hugging and crying. It was quite the sight to see!
13 Comments:
Barbara - I wish I could see you jumping up and down, singing, and typing all at the same time! The vision in my mind is hilarious!! But it is such good news, and thank you for rejoicing with us!
Love, Valerie
Congratulations, I'll be praying that all continues to go well.
I rejoice with you that your prayers have been answered.
God Bless you and yours!
I know how you feel. This is great news!
Nettie: Thank you so much Nettie! I appreciate your prayers.
Tyra: Your thoughts and prayers mean a lot to me!
Ukok: The thing that touches me the most about blogging is that I "meet" new people, like you, who embrace situations in my life and wish me well. Thank you so much!
Sarah - Yes, I knew that you would know how this feels! Aren't our daughters worth every minute of anxiety and joy??? Thanks!
Oh what glorious news! God answers our prayers and He is so mighty and so good. Amen! Praise God from Whom all blessings flow. I rejoice with you, Val and with your daughter and with your family.
Gina - We are still rejoicing - I notice that my daughter's attitude has definitely changed over the past couple of days, and I know it's because she is finally beginning to feel like she's getting better. It's been such and up and down battle for her! Thanks!
Carol (aka TGT) - Thank you! Yes, I'm near Columbus - in a rural area. We've been in Ohio for 25 years - we grew up in Michigan. Where in southern Ohio are you from?
That's great news Valerie!!! God is good.
I'm jumping too! Praise Him, all He does and all He is! Amen, allelujah and Woo Hoo!
Congratulations on that good news. I haven't read up on your story here. However, our son was on ACTH for a summer, which was also a steroid, for treatment of infantile spasms. The side effects for an infant were terrible. I'm so glad for your whole family.
Good for you!
Life is precious.
God is good.
Stacy, Jules, Julana, and BWH:
Thank you so much for stopping by and lending your support and happiness for my situation. It means a lot to me! And yes, GOD IS GOOD.
Valerie
Gayla:
Thanks for stopping by, and I hope you frequent my blog often! I enjoyed my "visit" at your place, too. My daughter has chronic lupus nephritis. The lupus has also go on the "attack" the liver and the blood. It's a disease which is insidious and unpredictable, so to have it under control is, indeed, a miracle.
Blessings to you and yours!
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