Friday, November 11, 2005

Another Update

What day is it, folks? I've been living in twilight zone. . .

TP was taken to a room in the Infectious Diseases unit of the hospital yesterday evening. Last night, I had a "run in" with one of the interns, and then the resident got upset with me, too, because I was questioning a decision they had made about NOT giving her any blood pressure meds until this morning. They finally gave some to her, at my insistence, and now today, she's had a really hard time keeping it within normal limits. Don't even get me started - but I'll tell you, once she is out of there, I am going to make a BIG STINK. Her regular doctor isn't following the case this admission, and there have been a series of decisions which have been made which I am very concerned about. I also get very pissed off (yes, guys, I do swear sometimes) when they treat me like I am some sort of overprotective and rambling idiot who is a dumbshit. You know, I have a Masters Degree - I have been in the medical field for over twenty years - I have doctors who call ME about psychiatric medications for MY opinion - so I do have a brain on my head. Also, I am a MOM who happens to know quite a lot about this disease which is afflicting MY daughter - and I have lived with it on a daily basis for over a year and a half now - so I DO know when something isn't quite right with my daughter - so I would appreciate it if some of these interns and residents wouldn't question MY judgement about my daughter's condition. Crazy jerks.

Anyway, she has been progressing pretty well, overall. They still don't know what caused the infection, but they have continued to give her antibiotics. She was pretty tuckered out today, so she slept some. She complained of a cough, and a pain in her chest, but they just said they'd "keep an eye on it". Because I made some mortal enemies with the intern and resident last night, I didn't question that decision (against my better judgement), and now I just got a phone call - only two hours after leaving the hospital - that her blood pressure is very high again and they are getting a chest x-ray on her.

So, I am waiting here by the phone for an update. I may go back in tonight to stay with her (oh, how I was looking forward to my own bed - but she needs me right now). I'll write more when I can. Sorry I can't answer all of your lovely comments from my last post.

Love 'ya all!


At 10:23 PM, Blogger Barbara said...

Oh Valerie,

My heart is shattered for you. Please sit still one minute and feel the big, big hug I am sending you at this very minute..((((((0))))))

Oh the frustrations. You know your child. You know her illness.. and they just don't listen. I can so identify and empathise...

But, as you say, the important thing is to be there for TP at the moment and sort it out with them later..

"May the raindrops
Fall lightly on your brow.

May the soft winds
Freshen your spirit.

May the sunshine
Brighten your heart.

May the burdens of the day
Rest lightly upon you,
And may God enfold you
In the mantle of His love"

My thoughts and prayers are with you all.

At 7:55 AM, Blogger Sheryl said...

I pray for healing for TP, and that the doctors listen to both her and you. I also send up prayers for DQ and your husband. It's hard when one family member is in the hospital. I pray TP feels better today and that her chest xray comes back clear.

ps I linked from Rebekah's website.

At 4:04 PM, Blogger Darlene said...

If I'm ever sick, I want you on my side of the ring. You are a tough mom, and one your family can be proud of. I left a message in todays post about your daughter in hopes that they will pray.

At 5:54 PM, Blogger Nettie said...

Well, no wonder you're in the Twilight Zone, no need to apologize for that. Hope everyone's holding up okay...

At 8:49 PM, Blogger HeyJules said...

Val, I can almost taste how upset you are and you have every right to be. I'm going to put T.P. in my prayer journal again tonight and you make sure she knows we're all fighting for her to get well and get back home.

Here's my [[[hug]]]. I'll throw you in that prayer journal, too that you get to sleep in that bed of yours very, very soon.

At 1:05 PM, Blogger Tyra said...

I'm sorry to hear that you've had problems with some doctors but good for you for standing up for your child. Like you said, you know her better than anyone and no one will look out for her like you would.

Praying things are better for TP and you.


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